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PraderWilliSyndrome news

Conference Educates Families and Professionals about Obesity-Related Genetic Disorder Prader-Willi Syndrome

PR Newswire (press release) - Sep 29, 2016
29, 2016 /PRNewswire-USNewswire/ -- Prader-Willi California Foundation will host its annual state conference to educate families and professionals caring for a child or adult diagnosed with Prader-Willi syndrome, a rare and extraordinarily complex ...

Mum forced to padlock the fridge because her 200kg son has Prader-Willi syndrome shares struggles and reveals she ...

Daily Mail - Oct 5, 2016
No matter how hard he tries it seems Henry Szaraz just can't stop gaining weight. The 19-year-old, from Sydney, has Prader-Willi Syndrome (PWS), a rare congenital disorder characterised by a ferocious appetite and an obsessive compulsion to eat.

Profile: Linsey Barone of Linsey Layne

ithaca.com - Oct 18, 2016
Layne was born more than two months early, with a rare genetic disorder called Prader-Willi Syndrome. After being in the intensive care unit three months, she made the decision to quit her job and pursue her other passion in life which allowed her to ...

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Prader Willi Syndrome books

Prader-Willi Syndrome: Coping with the Disease - Living with Those Involved

by: U. Eiholzer
A Karger 'Publishing Highlights 1890–2015' title
Over the past years, research into the Prader-Willi syndrome (PWS) and its treatment options has progressed enormously and new insights have greatly improved the quality of life of those affected. For many years, Urs Eiholzer has been engaged in the care of children with PWS and their families. He has published a great number of seminal scientific articles and contributions and supports a comprehensive, integrated treatment approach, taking into account both the biological and the psychological aspects of the syndrome.
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Prader-Willi Syndrome: How Parents and Professionals Struggled and Coped and Made Genetic History

by: John Hernandez-Storr
On March 28, 1971, Fausta Deterling gave birth to a boy. Curtis was floppy and had little appetite. When he was five months old, a doctor told his parents that Curtis had Prader-Willi syndrome. He told them that when Curtis became a toddler he would develop a huge and life-long appetite. He told them Curtis would become quite obese, would not be 100 percent mentally, and would not live past his twenties. There was no cure or treatment.Fausta and her husband, Gene, did not accept this. Neither did a small band of professionals.
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Management of Prader-Willi Syndrome

Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. The text presents historical, medical, and genetic information to orient the reader. The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings.
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Prader-Willi Syndrome: A practical guide 1st edition by Waters, Jackie Paperback

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Prader Willi Syndrome videos

A Snapshot of Prader-Willi Syndrome

Composed of three other videos (with respect to their copyrights), this video serves as a quick, informative snapshot of Prader-Willi Syndrome. Target audience ...

Prader-Willi Syndrome

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Prader-Willi Syndrome

Prader-Willi syndrome is a rare genetic disorder that causes characteristics such as obesity due to an excessive appetite. A psychiatrist explains the different ...

Prader-Willi Syndrome... A Mother's Perspective

Interview with 3 mothers and their journey living with a child with Prader-Willi Syndrome. From hearing the words (Prader Willi Syndrome) for the first time to ...

Prader-Willi Syndrome - Eva's Story