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PraderWilliSyndrome news

Oxytocin Treatment Assessed in Infants with Prader-Willi Syndrome

Monthly Prescribing Reference (registration) - Jan 19, 2017
HealthDay News — For infants with Prader-Willi syndrome (PWS), oxytocin (OXT) administration is associated with improvement in feeding and social skills, according to a study published online January 18 in Pediatrics. Maïthé Tauber, MD, from the ...

Experimental therapy for Prader-Willi syndrome shows promise in mice

Science Daily - Dec 27, 2016
Drugs capable of activating silenced genes improve survival and growth outcomes in a mouse model of Prader-Willi syndrome (PWS), a rare and incurable childhood disease, according to a study funded by the National Institutes of Health (NIH). PWS occurs ...

Want Something New to Help Infants with Prader-Willi Syndrome? How about Oxytocin?

AAP News - Jan 20, 2017
We are all likely familiar with the feeding difficulties of infant patients with Prader-Willi syndrome (PWS) but did you ever think that a deficiency of oxytocin could be at play? Maybe if you are an endocrinologist you would be familiar with the fact ...

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Prader Willi Syndrome books

Positive Winning Soul Defeating Prader-Willi Syndrome

by: Rhoda L. Ross-Williams
Positive Winning Soul is a powerful story about a family's struggles and triumphs living with Prader-Willi Synsrome (PWS). Rhoda L. Ross-Williams takes the reader on a journey of multiple medical crisis including Steven Johnson Syndrome (SJS) and miracles. Coupled with unnecessary battles with in humane for profit heath care insurers refusal to pay refusing to pay for the life saving treatment. She also had to battle a non compliment school system that refused to met her child's best interest.
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Prader-Willi Syndrome: How Parents and Professionals Struggled and Coped and Made Genetic History

by: John Hernandez-Storr
On March 28, 1971, Fausta Deterling gave birth to a boy. Curtis was floppy and had little appetite. When he was five months old, a doctor told his parents that Curtis had Prader-Willi syndrome. He told them that when Curtis became a toddler he would develop a huge and life-long appetite. He told them Curtis would become quite obese, would not be 100 percent mentally, and would not live past his twenties. There was no cure or treatment.Fausta and her husband, Gene, did not accept this. Neither did a small band of professionals.
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Prader-Willi Syndrome: and Other Chromosome 15q Deletion Disorders

Although Prader-Willi syndrome was first described 35 years ago, it was following detection of an interstitial chromosome 15q deletion in some affected patients ten years ago that it became a major focus of multidisciplinary scientific interest. This interest was compounded by the later determination that some patients with a clinically distinct disorder, Angelman syndrome, apparently also had the same chromosome 15q deletion. Subsequently, molecular genetic studies showed that some cytogenetically normal patients with both disorders have uniparental disomy, maternal in Prader-Willi syndrome and paternal in Angelman syndrome.
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Management of Prader-Willi Syndrome

Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. The text presents historical, medical, and genetic information to orient the reader. The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings.
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Prader Willi Syndrome videos

A Snapshot of Prader-Willi Syndrome

Composed of three other videos (with respect to their copyrights), this video serves as a quick, informative snapshot of Prader-Willi Syndrome. Target audience ...

Prader-Willi Syndrome

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Prader-Willi Syndrome

Prader-Willi syndrome is a rare genetic disorder that causes characteristics such as obesity due to an excessive appetite. A psychiatrist explains the different ...

Prader-Willi Syndrome - Eva's Story


Prader-Willi Syndrome... A Mother's Perspective

Interview with 3 mothers and their journey living with a child with Prader-Willi Syndrome. From hearing the words (Prader Willi Syndrome) for the first time to ...