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PraderWilliSyndrome news

Topiramate May Help Food-related Issues in Prader-Willi Syndrome, Case Report Suggests

Prader-Willi News - Jul 12, 2018
Treatment with anticonvulsant topiramate (sold under the brand names Topamax, Trokendi XR, and Qudexy XR) may help reduce food-related aggression and cravings in Prader-Willi syndrome (PWS) patients, a case report suggests. The research ...

Coronary Artery Disease May Be Underdiagnosed in Prader-Willi Syndrome, Case Study Suggests

Prader-Willi News - Jul 9, 2018
People with Prader-Willi syndrome (PWS) may have an increased risk for coronary artery disease (CAD), a Portuguese case study suggests. CAD is the most common type of heart disease. It is characterized by the narrowing and hardening of arteries that ...

The Foundation for Prader-Willi Research and Zafgen Partner for PATH for PWS Natural History Study

Digital Journal - Jul 12, 2018
The Foundation for Prader-Willi Research (FPWR) and Zafgen, Inc. have partnered to execute a 4-year study that will advance the understanding of the natural history and medical events in people with Prader-Willi syndrome (PWS). The PATH for PWS study ...

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Prader Willi Syndrome videos

People Suffering From Prader-Willi Syndrome | Insatiable Hunger (Full Documentary) | Only Human

Life is full of challenges – but some people face more than their fair share. Some grow up in a world where parents must padlock the fridge and cupboard doors ...

Prader-willi syndrome - causes, symptoms, diagnosis, treatment, pathology

What is Prader-Willi syndrome? Prader-Willi syndrome is a genetic imprinting disorder affecting chromosome 15, which causes a variety of symptoms including ...

A Snapshot of Prader-Willi Syndrome

Composed of three other videos (with respect to their copyrights), this video serves as a quick, informative snapshot of Prader-Willi Syndrome. Target audience ...

Prader-Willi Syndrome - Eva's Story


Allie's really hungry ...a look at Prader-Willi Syndrome...Could you tell her no?

After dinner Allison (6) is pleading with us for more food. It is very difficult to tell her no. She really is still hungry. Prader-Willi syndrome is just so difficult...if only ...